Chemo Day II

This evening everyone is exhausted, even though today seemed to go better than yesterday.  It was better in that the crying was more manageable, and less traumatic on us adults.  It was harder in that Mason vomitted a few times and was obviously nauseated.

Before heading to bed Leslie said she'd like to be put into a sleep induced coma for the next 10 years.  Prior to this visit, they were starting to feel optomistic - EUA's were stretching to 6 weeks apart instead of 3, etc.  The chemo is a different scenario all together.  Lots of ups and downs as a parent...

Spirits for majority of the day were pretty dang good today.  Earlier this morning Leslie met another Rb family who was recently diagnosed.  As an outsider, I was able to observe Leslie and Richard as they shared their hopeful perspective with this family.  Although the Low's are fairly new to Rb, I think they were able to remember back to those first frightening days of diagnosis and empathize with this family, and share some hope that it does get better...  And, they meant it sincerely.  Even though their world was turned upside down this week, they can still look back and feel grateful for the good care they've received, and the positive experiences that have come.

Mason came 'home' (to the condo) this evening.  He will receive hearing tests and blood work tomorrow.  He is doing exceptionally well considering all he's endured.

Starting off the day

 This wasn't even all the oral meds...

 Daddy and a sleeping Mason

 

Mason and Auntie Em

I don't have pictures with grandma and grandpa Low today because I tag teamed with them.  When they were at the hospital, I was at the condo with the other babies...  But they are here helping too.

It takes 2 to help with Mason on a chemo day.  He needs constant holding and rocking and tummy rubbing.  It's too tiring for just one person.  Perhaps if we had a giant lazy boy recliner we'd be in better shape. :)

 This shows Mason's port.  It is then secured lower on his tummy because he's at that magical age where he tries to grab and tear at everything he isn't supposed to...

 Sometimes (not very often) the gravity of everything just gets to Les.  I made her lie down for a minute.

 

 Daddy and Mason.  

Meanwhile Luke and Thomas were champs back at the condo.  

Getting some mommy love before bed.